Here is a brief look at the day to day schedule of the Meyer Family. Although it looks like our life is constantly surrounded by issues related to Cystic Fibrosis, these things are a matter of fact for our family and we do it all, knowing that health and happiness are our ultimate goals. 7:30 a.m. Both boys take acid reducers to help their digestive enzymes work the best they possibly can. They have to take them 1/2 hour before eating, so we usually get some treatments done before breakfast.
Ethan Sky does his treatments first in the morning, which last about 24 minutes. The vest basically shakes his lungs up to make sure that the sticky mucus doesn't stick to his lungs, which makes it easier to cough it out. Through his nebulizer, he is inhaling Hypertonic Saline Solution. It is basically a high concentration of salt water, that goes in and thins out the mucus that might be in his lungs.
8:00 a.m. Breakfast time Every morning the boys have "healthy" yogurt (read on for an explanation) and this morning they are also eating gluten free zucchini bread, slathered in lots of organic butter.
8:30 a.m. or so - It is Caleb's turn to do his treatments, which are the same as Ethan's. He chose to watch Dumbo this morning. This was a huge surprise, as he most often will choose Buzz Lightyear for every treatment.
While Caleb is doing his treatments, Ethan Sky is doing some math homework along with nebulizing Pulmozyme. This is a medication which also helps to thin the mucus and makes it easier to cough out. The goal is, if there is any mucus in his lungs, we want it out. The sticky mucus is a perfect breeding ground for some very nasty bacterias!!!
9 a.m. I get all the boys' pill boxes ready for the day. They take magnesium, probiotics, many glyconutrients products, digestive enzymes, specialized CF vitamins and Omega 3 Fatty Acids. I will be posting more about the different products the boys take in the near future.
9:30 a.m. Healthy Juice Time (read on for more info) and time for some school books and some fun books.
12:30 p.m. Lunch Time The boys are having quinoa/corn pasta with lots of butter and salt and some ground burger. We try to make lunch a meal where we don't have food battles:)
2 p.m. - while Caleb takes a nap, the juice gets made for the next 3 days. It takes about 20-30 minutes to make, depending on how many interruptions I get:)
My reward on juice days is a homemade Coconut Milk Mocha Frapp.....YUM!!!!
5 p.m. Caleb Kenneth does his vest first in the evenings and what movie did he pick???? None other than Buzz Lightyear "Fighting Zurg." It can sometimes be a fight to get him do the vest, so if he wants to watch that movie 100 times in a row, we deal:)
5:30 p.m. Ethan Sky's turn is next. They do the same treatment as in the morning. 24 minutes of the vest and nebulizing Hypertonic Saline Solution.
While the boys are doing their treatments, Joshua or I make the yogurts for the night and the morning. They contain glyconutrients, apple cider vinegar, oat flour and for Caleb, his nasty orange CF vitamins.
6 p.m. Dinner time, bring on the food battles:) The boys had brown rice (slathered with butter and salt), sweet potatoes (slathered with butter) and salmon. Caleb gobbled up the salmon like mad and threats were made on Ethan's life just to have three bites of it;)
7:30 p.m. Healthy Juice Time For their night time juice, the boys take turns choosing a movie to watch (except on Sundays when Mom and Dad get to choose). Tonight was Ethan's turn and he chose The Neverending Story. We finish up the night with a couple of Jesus stories, prayers for all our loved ones and then the lights go out.