Tuesday, May 18, 2010

A Day In The Life.......

Here is a brief look at the day to day schedule of the Meyer Family. Although it looks like our life is constantly surrounded by issues related to Cystic Fibrosis, these things are a matter of fact for our family and we do it all, knowing that health and happiness are our ultimate goals. 7:30 a.m. Both boys take acid reducers to help their digestive enzymes work the best they possibly can. They have to take them 1/2 hour before eating, so we usually get some treatments done before breakfast.

Ethan Sky does his treatments first in the morning, which last about 24 minutes. The vest basically shakes his lungs up to make sure that the sticky mucus doesn't stick to his lungs, which makes it easier to cough it out. Through his nebulizer, he is inhaling Hypertonic Saline Solution. It is basically a high concentration of salt water, that goes in and thins out the mucus that might be in his lungs.
8:00 a.m. Breakfast time Every morning the boys have "healthy" yogurt (read on for an explanation) and this morning they are also eating gluten free zucchini bread, slathered in lots of organic butter.

  8:30 a.m. or so - It is Caleb's turn to do his treatments, which are the same as Ethan's. He chose to watch Dumbo this morning. This was a huge surprise, as he most often will choose Buzz Lightyear for every treatment.

While Caleb is doing his treatments, Ethan Sky is doing some math homework along with nebulizing Pulmozyme. This is a medication which also helps to thin the mucus and makes it easier to cough out. The goal is, if there is any mucus in his lungs, we want it out. The sticky mucus is a perfect breeding ground for some very nasty bacterias!!!

 9 a.m. I get all the boys' pill boxes ready for the day. They take magnesium, probiotics, many glyconutrients products, digestive enzymes, specialized CF vitamins and Omega 3 Fatty Acids. I will be posting more about the different products the boys take in the near future.

9:30 a.m. Healthy Juice Time (read on for more info) and time for some school books and some fun books.

12:30 p.m. Lunch Time The boys are having quinoa/corn pasta with lots of butter and salt and some ground burger. We try to make lunch a meal where we don't have food battles:)

 2 p.m. - while Caleb takes a nap, the juice gets made for the next 3 days. It takes about 20-30 minutes to make, depending on how many interruptions I get:)

 My reward on juice days is a homemade Coconut Milk Mocha Frapp.....YUM!!!!

 2:30 p.m. Snack time for Ethan He gets to choose what he wants to eat and drink. Lately it has been Chocolate Chip Scones (slathered with butter), Pie Crust (slathered with butter) and Almond Butter Brownies

5 p.m. Caleb Kenneth does his vest first in the evenings and what movie did he pick???? None other than Buzz Lightyear "Fighting Zurg." It can sometimes be a fight to get him do the vest, so if he wants to watch that movie 100 times in a row, we deal:)

5:30 p.m. Ethan Sky's turn is next. They do the same treatment as in the morning. 24 minutes of the vest and nebulizing Hypertonic Saline Solution. 

While the boys are doing their treatments, Joshua or I make the yogurts for the night and the morning. They contain glyconutrients, apple cider vinegar, oat flour and for Caleb, his nasty orange CF vitamins. 

6 p.m. Dinner time, bring on the food battles:) The boys had brown rice (slathered with butter and salt), sweet potatoes (slathered with butter) and salmon. Caleb gobbled up the salmon like mad and threats were made on Ethan's life just to have three bites of it;) 

7:30 p.m. Healthy Juice Time For their night time juice, the boys take turns choosing a movie to watch (except on Sundays when Mom and Dad get to choose). Tonight was Ethan's turn and he chose The Neverending Story. We finish up the night with a couple of Jesus stories, prayers for all our loved ones and then the lights go out.


  1. Wow, your day is full! Thank you for sharing a slice of your life with us! I loved it! (And, so excited for you and your mocha reward!!) :)

  2. hey! I would love to email you! yes I also take glyconutrients!!!! my email is chooselife828@gmail.com

  3. I would LOVE to know more about this "juice".

    Also food battles -don't have them. I have two stepsons that are awful eaters. The oldest used to make himself puke so he could get out of eating. SOOO now I simply make them meals, serve them, and they atleast have to take 2 bites of everything on their plate and then they can be done. Most of the time they end up eating 2 times as much after the inital bites. I treat my daughter the SAME way (she is 2.5). She is failure to thrive so I understand wanting them to just eat anything, BUT I promise this totally works. I have a ton of tricks up my sleeve if you are interested.

  4. I got a little misty eyed reading this.

    My 3 (almost 4yr old) has CF. I am a single mother (22yrs old), and as much as we stick to a routine, every single day is SUCH a battle. especially with food. Dameron HATES eating. He also makes himself throw up sometimes.

    This post gave me a lot of insight. Thank you.

  5. Allison Renee....those battles are not fun!!! We are in the middle of those with my 7 year old. Contact me if you want to chat heleadsmyway@cox.net

  6. Wow!!! I love reading your posts Melissa! You're such a hard working Mom - Ethan & Caleb are so blessed!